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Listings in science niche categories: Health, Diseases, Space, Technology, Energy, Environment, Agriculture and more.

Rare Diseases



The Children’s Rare Disease Network will create greater public awareness for rare disease, while connecting, educating and empowering the millions of families and caregivers affected, through an online community and collaborative portal.
http://www.crdnetwork.org
(Clicks: 0; Listing added: Oct 9, 2010) Listing Details Report Broken  Listing
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases, dedicated to improving the quality of life of all people living with rare diseases in Europe. Eurordis' mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level.
http://www.eurordis.org/
(Clicks: 0; Listing added: Oct 14, 2010) Listing Details Report Broken  Listing
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
http://www.rarediseases.org/
(Clicks: 0; Listing added: Oct 14, 2010) Listing Details Report Broken  Listing
The ORDR Web site aims to answer questions about rare diseases and the activities of the ORDR for patients, their families, healthcare providers, researchers, educators, students, and anyone with concern for and interest in rare diseases. The site provides information about ORDR-sponsored biomedical research, scientific conferences, and rare and genetic diseases. It also serves as a portal to information on major topics of interest to the rare diseases community
http://rarediseases.info.nih.gov/
(Clicks: 0; Listing added: Oct 9, 2010) Listing Details Report Broken  Listing
Rare Disease UK is an alliance of key stakeholders brought together to develop strategic planning for rare diseases in the UK. It is a joint initiative of Genetic Alliance UK (the national charity of over 130 patient organisations supporting all those affected by genetic disorders) and others in response to unmet health care needs of hundreds and thousands of families who currently struggle to get access to integrated care and support from the NHS.
http://www.raredisease.org.uk/
(Clicks: 0; Listing added: Oct 9, 2010) Listing Details Report Broken  Listing
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